Today Is The Day!

Today's the day we find out whether or not the grafts took and if Daniel is ready to lose his breathing tube. Over the weekend Daniel did very well and behaved himself nicely. In preparation for the scope this afternoon the Drs. switched his sedation medication and he continues to sleep pretty soundly. Given his air leak he sounds like he is snoring so it is pretty funny to listen to him. Here is what he looked like early this morning. Could the kid be more comfortable? (In a manner of speaking.)

Given the large amounts of drugs Daniel has been on (as one of the Drs. stated "elephant doses") we are expecting him to go through some withdrawals. Given this, the Drs. have started a methadone wean on him. Yes, once again this child is on methadone. I am just hoping that we are off of it before we leave the hospital so I don't have to ask for it again. Not an experience I really want to relive again. The "funny" thing is that by the end of this experience Daniel will have "experimented" with narcotics, sedatives, muscle relaxers, and anesthesia. At least this way we can tell him he does not have to try drugs later in his life since he has already been on all the "hard core" stuff even before his first birthday.

His incision sites look great. The site on his chest has almost scarred over as you can see by the photo. The one on his neck, well, we haven't been able to see it yet given his puffiness and double chins. His nose continues to heal and they now think it is just superficial.

Once we know more this afternoon we will let you know. Within a couple of hours, our lives as we have known it with Daniel will be changed forever. Something definitely to look forward too. Until later......