Tuesday, July 29, 2008
As for the tally, thanks to the incredible job everyone did the outing was a huge success!! Special thanks must once again go out to Eve who spearheaded the outing and stuck with it despite some bumps in the road. We must also thank all the sponsors, donors, and raffle donors who without their support the outing would not have been such a success. In the end, the outing raised over $10,000 for Daniel's foundation. THANK YOU!! We can't even begin to tell you how much we appreciate your support and how grateful we are to have such fabulous friends and family like all of you in our lives. THANK YOU!!!
As to whether or not will there be an outing next year.....we will see since we are hoping that this time next year all we are doing is follow-ups. Thanks again!!!
Sunday, July 27, 2008
We also tried to take him to the ocean but it ended up pouring on us so we will just have to reschedule that milestone.
Here's to reaching and cherishing milestones!!!
Tuesday, July 22, 2008
Today I was fortunate enough to take Daniel to the Lake in Allendale thanks to Barbara. He even made friends with a little girl who was there with her grandmother and stayed in his float for the longest time, which he had no interest at all in on Sunday.
Sunday, July 20, 2008
Now, given the state of his hair we decided it was finally time to cut Daniel's hair. (He is 14 months old already.) Actually Mike decided and cut his hair as Daniel napped this afternoon. Though Mike did not cut a ton off, he did do a great job.
And He still LOVES his Daddy...
And it did not take long for Daniel to get readjusted to the "new Doo."
Hope your Monday is memorable!
Tuesday, July 15, 2008
Months ago I sent a photo of Daniel holding Jimmy Buffett's new live CD into his website. (I think Daniel is like 7 months old in the photo). Hoping he would make the cut I checked the website religiously and then given all our craziness the last few months I totally forgot about it. Now being a true "Parrotthead" I checked today and to my surprise what did I find --- Daniel is Famous!
Just click on the link to see the photo. He is on the second row, center photo, on page one (could not ask for better placement): http://www.margaritaville.com/index.php?page=pphotos&ga=54.
Now we just have to get him to his first concert!! Fins Up!!!!
Saturday, July 12, 2008
Daniel continues to enjoy his swing and yes those are crocs on his feet!
Enjoy your Sunday!!!
Thursday, July 10, 2008
Daniel also underwent a feeding evaluation on Tuesday. The good news is that Daniel has started to take a liken to Cheerios, Doritos, Swedish meatballs and pizza. Though we thought this was weird we have learned that it is not. Apparently kids with swallowing issues tend to like foods that have more of a "bite" to them. We just must get Daniel to eat more consistently. What a fun challenge waiting us. Next week we are scheduled for another feeding evaluation locally so we will see what they say. Keep your fingers crossed.
Until next time....
Friday, July 4, 2008
Daniel also thought he was "Mr. Liberty" tooling around in his wagon this afternoon....
This evening we are off to watch the fireworks with friends in Ramsey. Hopefully Daniel will do as well as he did on Wednesday night when we took him for a "fireworks test run." I know only us but this time last year Daniel was recuperating in the NICU from getting his trach and g-tube. Crazy how fast time has gone and it's unbelievable how far we have come. Makes you really appreciate being "free" to do whatever your hearts contends.
Anyway, Happy Fourth of July. We hope you have/had a safe and happy one. (Where is the summer going....)