So the day has finally come. We got the word today that we can reduce Daniel's tube feeding by one full one daily since he is eating so well by mouth these days. YEAH!! So rather than the three he gets daily, he will only get two. In actuality he has been getting two and half these days as we did not want to over feed him since he has been eating like a champ at every meal. This is the first step in getting his G-Tube out permanently.
They did weigh him today and will weigh him again in two weeks to see if he maintains his weight or even gains, which would be awesome. If he does gain or maintains, they will probably once again reduce the liquid feeds by one. What we don't want is a drop in weight. If that happens we will be back to square one.
So let the countdown begin!!
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