Though we got a reprieve from our ENT Drs. in Cincinnati we were not able to schedule a follow-up scope with Daniel's GI Drs. in June so we had to go back on Tuesday and Wednesday. The actual scope was yesterday (Wednesday) and Daniel did awesome. His esophagus had not retracted and is at the same size it was prior to his airway surgery - a very good thing. We did learn that Daniel will always have scarring in his esophagus all his life and he just must learn how to eat slowly. The Drs. will continue to monitor him but the good news is that they will do it as part of our ENT scopes so we will just have to make one trip out there. His GI Drs. also gave us the reprieve of three months so we don't have to go out to Cincinnati until October!!! YEAH!!!
Daniel also underwent a feeding evaluation on Tuesday. The good news is that Daniel has started to take a liken to Cheerios, Doritos, Swedish meatballs and pizza. Though we thought this was weird we have learned that it is not. Apparently kids with swallowing issues tend to like foods that have more of a "bite" to them. We just must get Daniel to eat more consistently. What a fun challenge waiting us. Next week we are scheduled for another feeding evaluation locally so we will see what they say. Keep your fingers crossed.
Until next time....
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