Daniel's Trach status as of December 14:
Unfortunately we did not get a Christmas miracle regarding Daniel's trach. There has been no improvements in Daniel's vocal cords and his Dr. does not think the nerve will come back. So we are looking into Drs and facilities that are the leaders in airway reconstruction. Our first step will be at Cincinnati Children's Hospital on January 7-10, 2008. We are also waiting to get an appointment at Children's Hospital of Philadelphia (CHOP) for an additional evaluation. If all goes well we will be able to do vocal cord surgery in early June with hopes that Daniel's trach can come out sometime in 2008. We will keep you posted.
For those of you who are interested in learning more about tracheostomy, the following website is filled with terrific information: http://www.tracheostomy.com/.
For those interested in information regarding vocal cord paralysis (VCP), the following websites are pretty decent:
http://www.nidcd.nih.gov/health/voice/vocalparal.htm
http://www.entnet.org/healthinfo/throat/Vocal-Cord-Paralysis.cfm
And for those interested in information regarding TE Fistulas, visit:
http://en.wikipedia.org/wiki/Tracheoesophageal_fistula
http://www.eatef.org/index.html
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